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Cassie and Tyler

Cassie and Tyler

Hello to all our leukodystrophy families. My name is Cassie, and this is my son Tyler. Tyler was diagnosed with Metachromatic Leukodystrophy late infantile (MLD) when he was 2.5 years of age. He is now 10 years old, and the absolute apple of my eye. It has been a...

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Safe in Sound Online Concert Series

Safe in Sound Online Concert Series

Introducing Safe in Sound’s new online concert series. They are offering free online performances to families anywhere in Australia affected by the Covid19 pandemic. For more information please contact Bronwyn at Leukodystrophy Australia or S.I.S directly on...

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Safe in Sound Online Concert Series 2020

Safe in Sound Online Concert Series 2020

Introducing Safe in Sound’s new online concert series. They are offering free online performances to families anywhere in Australia affected by the Covid19 pandemic. For more information please contact Bronwyn at Leukodystrophy Australia or S.I.S directly on...

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The NAA issued a Joint Position Statement

The NAA issued a Joint Position Statement

The Neurological Alliance Australia has today issued a Joint Position Statement calling on the Australian Government to permanently extend the amendments made to MBS telehealth items introduced in response to the COVID-19 pandemic. These supports are currently...

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