At last a response to the Tune Review and it is a positive for NDIS participants. Minister for the National Disability Insurance Scheme, Stuart Robert today announced the most substantial package of reforms to the NDIS since its establishment. The package includes...

Introducing Safe in Sound’s new online concert series. They are offering free online performances to families anywhere in Australia affected by the Covid19 pandemic. For more information please contact Bronwyn at Leukodystrophy Australia or S.I.S directly on...

The organizers of the 2020 PMD Virtual Symposium would like to extend their most sincere thanks to all the families, clinicians, scientists, and honored guests who took the time to join us for the event. The recorded presentations are now available for those who...

The Neurological Alliance Australia has today issued a Joint Position Statement calling on the Australian Government to permanently extend the amendments made to MBS telehealth items introduced in response to the COVID-19 pandemic. These supports are currently...

Parents of children with Leukodystrophy, Parenting stress is an important issue to family functioning and wellbeing. It is especially important to this community where parenting stress is found to impact significantly on symptom severity, disability and quality of...

Around 3000 Australian families are expected to benefit each year from the Federal Government’s listing of genetic testing for childhood syndromes and intellectual disability on the Medicare Benefits Schedule. Read More At Australian Genomics