Events & Meetings

Upcoming Events & Meetings

Please note 2020 EVENTS are subject to change due to COVID-19 

Leukodystrophy Australia has fantastic opportunities for you to support us, have fun, and socialise throughout the year.  Our established events would welcome your participation and/or suggestions.  Perhaps you would like to create and run your own fundraising event to support us and eachother!  If you need any help with an event, please contact Bronwyn on 0418 755 994. 

Fundraising and volunteering are important investments in our future.  Our volunteer Committee of Management is one such area.  Should you be interested, in the management aspect of our group, we would be most happy to talk with you.  Any help you can give is, and will be, greatly appreciated!   

Committee Meetings are held the 2nd Tuesday evening bimonthly @7pm EST

Diary Dates 2020 

February 26

Parliamentary Event:  RVA unveiling National Strategic Action Plan for Rare Disease

February 29

Rare Disease Day – Facebook promotion to encourage and support families to get involved.

April 4

‘Living with Leukodystrophy’ – Information, Connection, Relaxation

Symposium Western Australia, Saturday 4 April 2020.  Medical & Science Presentations (genomics, NDIS, Mission Massimo Leuko Program, screening), Peer Support, Social Contacts coming together to learn, share, bond.  

POSTPONED DUE TO COVID-19

September 5

AGM meeting via Zoom. Details TBA.

September

Leukodystrophy Awareness Month – Greyhound Racing South Australia multiple events and races over September

October 2

Charity Challenge Leukodystrophy Australia Golf Day @ Long Reef NSW:  Get a team together or come along and join a team to play, seek out support from your friends, family or colleagues, buy a sponsorship, donate prizes, come for lunch which is free for LA Members.

Find Out More

November 8

Sunday Mail City Bay Fun Run – Running for Ryder & Leukodystrophy Australia.

Log in to pledge support for all our individuals and families.

https://give.everydayhero.com/au/running-for-ryder-1

November

TBA

South Australian Family Gathering

November 21

Charity Challenge Gala DinnerHyatt Regency, Sydney @ 6.30pm.

Find Out More

December 9

Charity Challenge Leukodystrophy Australia Golf Day @ Woodlands – Wednesday @ 8am-3pm.

Get a team together or come along and join a team to play, seek out support from your friends, family or colleagues, buy a sponsorship, donate prizes. Come for lunch – it’s free for LA family members.

Registration Link

RSVP for Events & Meetings

Skip to content