Videos

The parents and individuals who share their photos, videos and stories inspire us; they help us feel less alone on this journey.  If you’ve got something you wish to share please get in touch – we have a whole country of people who would love to hear from you.  Heartfelt thanks for your share.

Safe in Sound Online Concert Series

Safe in Sound Online Concert Series

Introducing Safe in Sound’s new online concert series. They are offering free online performances to families anywhere in Australia affected by the Covid19 pandemic. For more information please contact Bronwyn at Leukodystrophy Australia or S.I.S directly on...

read more
Long Walk for Leukodystrophy 2016

Long Walk for Leukodystrophy 2016

#wheresjohn - John Olsen is a champion, walking diagonally across Australia (5,500 km) to raise funds in support of those living with Leukodystrophy. His only life line is a motorless trolley weighing in at 200kg. Leukodystrophy is a large group of severe...

read more
Australian Story – Cracking the Code

Australian Story – Cracking the Code

Introduced by Dr Norman Swan from ABC Radio's Health Report The Damiani family's story has been described as a breathtaking example of how medicine can be transformed by the determination of ordinary people. Four years ago, Stephen and Sally Damiani's baby son Massimo...

read more
Skip to content