Videos

The parents and individuals who share their photos, videos and stories inspire us; they help us feel less alone on this journey.  If you’ve got something you wish to share please get in touch – we have a whole country of people who would love to hear from you.  Heartfelt thanks for your share.

Long Walk for Leukodystrophy 2016

Long Walk for Leukodystrophy 2016

#wheresjohn - John Olsen is a champion, walking diagonally across Australia (5,500 km) to raise funds in support of those living with Leukodystrophy. His only life line is a motorless trolley weighing in at 200kg. Leukodystrophy is a large group of severe...

read more
Australian Story – Cracking the Code

Australian Story – Cracking the Code

Introduced by Dr Norman Swan from ABC Radio's Health Report The Damiani family's story has been described as a breathtaking example of how medicine can be transformed by the determination of ordinary people. Four years ago, Stephen and Sally Damiani's baby son Massimo...

read more
Skip to content