Lived Experience Series 2019

Lived Experience Series 2019

Rare & Undiagnosed disease

Courtesy & thanks to GSNV, and the individuals and families who contributed

Here are several stories about rare and undiagnosed disease put together by Genetic Services Network Victoria.  While they share commonality across the spectrum of rare and undiagnosed disease, 3 stories are from 3 different Leukodystrophy perspectives:

Founder of Leukodystrophy Australia, and late onset diagnosed person: Sr Julie Thomas OAM

Brothers, early onset diagnosed: Victor and Max McDonnell

Office Manager: Bronwyn Byrne