General News

National Strategic Plan for Rare Disease 2020

Feb 26, 2020 | General News

The Murdoch Children’s Research Institute’s (MCRI) Rare Diseases Now (RDNow) program, launched today on the eve of Rare Disease Day (29 February), will bring together doctors, genetic counsellors, research scientists and bioinformaticians to tackle unanswered and important issues for families affected by rare disease.  RD Now, a Melbourne based program will accelerate our understanding of rare diseases and develop new treatments for the one in 12 babies born with a rare genetic condition.

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